I am 14, and have had 2 blood tests for Celiac, and they both came back positive. They also did a gene test, which showed that I did have the Celiac gene. The biopsy of my intestine was negative though.
Posted on December 28th, 2009 by Bob
Filed under: Celiac Disease in Children
why don’t you ask your doctor? They’ll be able to tell you.
Yes it is possible according to Dr Green. The damage to the small intestine is not uniform in celiacs and if they got an undamaged sample then that would not show celiac. The other issue is that the DR looking at the sample may not be experienced enough. See if you can get the samples and pictures and reports that were done sent to an experienced GI pathologist maybe connected with one of the primary celiac research schools. Columbia, University of Maryland or Chicago(i think)
Given your blood tests and genetics, it seems likely that you have celiac. Do you have any symptoms? If you do and eat gluten free, do the symptoms go away. Talk this over with your parents and doctor to see what the next step should be.
yes it could very well mean that you have a smaller version of celiac. I have celiac myself and when I was diagnosed my biopsy came out negative at first and then the blood panel came back positive. then they did it again a few weeks later and it came back positive.
definately ask your doctor and figure out what is best. just to be on the safe side do NOT go on the gluten free diet until they diagnose you for sure. If you do it will only make it harder to discover if you do or do not have celiac
good luck and trust me…its not as bad as it seems